I guess why it hurt so much was because I just wanted people to treat me like I was normal. I didn't want to be fussed over or pitied. I just wanted to be a normal kid and do normal things. I could hide my scars. I could put on a smile and hide my pain but I couldn't pretend that my hair wasn't falling out.
Sometime after that my father had one of his regular union meetings. By this time word of my diagnosis had spread through the union and my dad's friends decided that they needed to spring into action. The people that my dad has worked with over the years have incredible hearts and they always band together when times call for them. They are also huge supporters of the MDA and have multiple fundraisers throughout the year as well as a large food drive each year to collect food for the poor. My dad helps in some way with every single event.
Even though some of these people had never met me, they decided to pass a hat at their meeting before dad arrived. At the end of the night they gave my father an envelope with the entire amount of a new wig.
I was blown away by this! What an incredible act of kindness. How humbling. Why would they want to help me? I mean nothing to them at all. It really made my heart sing. They cared enough to want me to feel like me again. Now I could feel "normal".
When we started Alissa's Hope, that was the feeling that we were hoping to give back to someone. We wanted the money that we raised to go to someone who really needed a hand, needed a pick me up, needed an advocate. We wanted the money to go to someone that would be inspired by the fact that a stranger cared enough about them that they made an effort to make a difference in their life. We hoped that the good feeling that this act of kindness had given them would make them want to pass along that good feeling to the next person once their life was back in order.
The gift that my dad's friends gave me was so much more than money, or the wig itself. My dad's friends gave me hope. And that is what I really needed.
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